Category Archives: as

asperger’s syndrome and related goobah

merphghbhdh

so “the hearing” happened today.

i got up and almost immediately i perceived that my mood was somewhat sour. it’s not too surprising, because i was up until 1:00 or so last night, playing a gig with snake suspenderz. it was also sort of expected, since, in my meeting with the attorney yesterday, he said that it would be considered “appropriate” for me to act as though i was stressed out and out of sorts, so i didn’t worry about it too much. moe and i got dressed and left for the hearing about the time that i would normally be getting up. strangely enough, the office building that the hearing happened in was a block up the street from top pot doughnuts, so i had doughnuts for breakfast, which while pleasant, gave me a massive sugar rush, followed by a crash which happened just about the time i was going in to the hearing room. moe went first, so they swore me in, and then almost immediately told me to go sit in the hall while moe testified. i’m not exactly sure why they separated us, but it seemed like they deposed moe for about 45 minutes, and then they deposed me. the testimony was more or less the same as it was in my “practice” deposition, yesterday. they discussed what “listing” i fell under and ultimately decided that it was 1202, which is “organic mental health” concerns, which include things like brain injury, with a possibility of 1210, which is “autistic spectrum” mental heath problems, which includes asperger’s syndrome. the psychological “expert” didn’t want to go with 1210 because i haven’t actually been diagnosed with asperger’s, but he agreed with me, and with ned, that i have probably had asperger’s my entire life. the psychological “expert” also asked me about my contrived (but entirely legal) name, which confused me, as it has nothing whatsoever to do with anything even remotely close to my reasons for applying for disability.

what it comes down to is that i won’t know for sure whether the judge decided in my favour or not for four to six weeks, but the attorney said that, according to his experience, there’s a 99% chance that he’ll decide in my favour.

i suppose i should be eccstatic, but in reality, i’m exhausted and depressed and my mood is still sour. i really want to get stoned out of my mind, but i’m still having major coughing spasms. i may get drunk, for the first time in my life, because i can.

coming to the end of another moisture festival

i met ukulele dick at the moisture festival the other day. his “real name”, acording to his schtick, is Banjo Penis. i traded him a copy of serpentine for a copy of his ukulele dick cd and a copy of his “Dick Dujour” cd, Music to Scare Children by. i’ve been listening to them on and off throughout the day, and i must say, the guy is more than just a ukulele player. i also made buttons for him that say “Act Dorky, Live Forever”. i’ve got performances on friday and sunday for sure, and possibly saturday.

the big news, or maybe not so big if you hang out with the right people, i guess, is that circus contraption is breaking up. i have no idea why, but i can imagine, as with most artistic organisations like that, that there were some artistic differences somewhere along the lines.

other news: my SSDI hearing is the 24th. i’m approaching it with an interesting mixture of hilarity and dread. i got to see part of the forms ned was filling out earlier in the week, and he said about 10 things, of which i would think that 1 of which should be enough to get me on the “disabled” list in a perfect world, but because of the fact that the world is decidedly imperfect, i don’t know if it will help or not. we’re going to work on it some more after the moisture festival is over.

also i’m getting ready to be able to accept credit cards on hybrid elephant, but i’ve only gotten one order since i went live with the new site, so i’m wondering if i can’t put it off for another month until i get more of an idea about whether or not people are going to notice it.

despite the fact that i won the battle of the computer in record time – this time – i learned a bunch of things that i didn’t know in the process. the main thing i learned is that the intermittent quiet scratching noise coming from the computer is the power supply fan, which, instead of turning on and doing what it is supposed to do when power is applied, in fact, it rotates weakly, not anywhere near fast enough to be anything like the heat sink that it’s supposed to be, and intermittently emits a scratching sound that makes me think that it, too, is not long for this world.

& stuff

me in 20 years

when you’re unemployed/unemployable/disabled, you get to a point where it doesn’t matter whether it’s the weekend or not. for me it comes down to working and doing what i do anyway, regardless of what day it is, or facing the possibility of even deeper depression because of the fact that i’m not really doing anything to bring income into the house. i’m a wage slave even when i deliberately try to remove myself from the cycle of wages and slavery.

along the same lines, i got a notice from the “Office of Disability Ajudication and Review” about my disability case the other day. a person who has never met me and knows nothing about me is going to decide whether or not i actually am “disabled”. thrill. if they decide that i am, then i’ll get disability retroactively from the time i first had my injury, a portion of which i will then have to fork over to the attorney who has sat there doing nothing for 2 years while the government decided to pull their collective thumb out of their ass and do something about it. if they decide i’m not disabled, then life continues exactly as it has been, except there is no further possibility of my being able to get disability from the government, ever. at this point, it’s still a 50/50 shot, which doesn’t make me feel particularly good about the chances.

meanwhile, i’ve been working hard on feeding the database, and i’ve run out of photos, which means that i’ve got to run another batch of product through the GIMP before going any further. i get the impression that i’m getting fairly close to being finished enough to go live with it, but there’s still darkness at the end of the tunnel. at this point, i don’t know if it’s because there’s still a long way to go, or if it will just be night when i reach the end.

the fremont philharmonic played at a benefit concert for HonkFest West at the Lo-Fi on friday. it went really well, despite having a substitute trumpet player. we had random dance/movement art going on while we played, including one piece that had a woman stripping, which was excellent. she said afterwards that she had only worked to a live band once before, and that we had blown them out of the water and wants to work more with us, which is amazing and exactly what i want to do – and it’s not because she’s a stripper, it’s because strippers always seem to have work, and if there’s money to be made, i wanna be a part of it.

moisture festival coming up. there’s a possibility that the circus contraption band has stolen april 1st from us, but i don’t know for sure.

sgurd! and wimple!

ned is the masters-degree counsellor assigned to me by community health. i don’t have to pay for him to talk with me (despite what he said in december, last year, apparently they have not required him to demand payment from me – yet), so he’s already taken less seriously than a counsellor that i would have to pay for would be, but because of the fact that he’s not an actual doctor (MD or PhD) he can’t officially diagnose me, and what he says has to be confirmed by someone who is an actual doctor before they take him seriously. nevertheless, he said something that i found really interesting yesterday, which is that he thought i am “seriously disabled,” but not by the brain injury… he has apparently decided that i do, in fact, have asperger’s syndrome. of course the fact that i also have a brain injury and resultant PTSD doesn’t help any, but he says that i was probably “seriously disabled” a long time before my injury.

part of me says “whew! finally someone sees what i’ve been seeing my whole life,” but part of me wonders how seriously they’re going to take him, and how much more turmoil and senseless delays i’m going to have to go through before i’m able to get disability. i’m not even concerned so much with money (although it would be nice) so much as i am with health insurance: my right shoulder has been really sore, and my right arm generally has been getting really weak over the past few months and i’d like to see a physical therapist about it before i’m not able to do things like play my tuba or my trombone… or type… 8/ also i haven’t got new glasses since a year before my injury – almost six years ago now – and they’re either too strong or not strong enough, which very likely means bifocals again, only the last time they prescribed bifocals was before my injury and once i was injured the bifocals made me dizzy and gave me a headache…

whinge, complain… 8/

great… 8b

i just received a letter from DSHS/DVR – the Department of Social and Health Services, Division of Vocational Rehabilitation. they are in receipt of my request for vocational services (it’s about time! i applied almost 5 years ago, and this is the first i’ve heard from them except for a notice telling me that i was on the waiting list.) and have scheduled an appointment for me on "Monday, 2/12/2008 at 10:00 am."

i wonder if this is a test, to discover whether or not i am aware of the fact that neither the 12th of february, nor the 2nd of december, if you’re being european, come on a monday this year… strangely enough, they’re both tuesdays…

if it is a test, i wonder how i should respond…